OMG I receive an email from India that the Manipal Hospital – Bangalore are not accepting any cases for Stem cell treatment towards Multiple Sclerosis from immediate effect. This is as per discussion with the scientific committee.
Including me!! WTF!!
I will not be getting treatment for my MS…well in the few months anyway.
I had planned to fly out first thing in June. I had made significant perpetrations for the journey, paid for all three airline tickets (mum, husband and myself), resigned from my job and gained the required Visa’s for my treatment. I am now left with no treatment options.
This decision could have not been worse been so close to my agreed start date for HSCT at Manipal hospital.
It feels like I was jumped by faceless thugs, kicked over and over in the gut and still feel winded. As you can tell I am left deeply distressed…well frankin pissed off!
Just to rub salt into the wound further, my tests for the progressive multifocal leukoencephalopathy (PML) returned positive that means I am at risk of the nasty JC virus which affects heaps symptoms include:
- Abrupt or significant personality changes
- Recent or sudden change in cognitive behaviour
- Unusual difficulty with speech
- Other physical changes
Currently no known treatment, prevention or cure for PML.
So I will be applying for treatment in other overseas hospitals keep watching for my progress