I am happy to report that my six (6) month MRI shows no active disease!
So the wonderful HSCT treatment was successful in stopping my MS from attacking my brain! YAY! Although unfortunately, I am very aware that I do still have many lesions (scars) in my brain and spine.
Check out below one of my MRI slides of my adorable brain, the white parts are damaged bits:
I have been recovering since my mayoblative HSCT treatment that was performed at St Vincents Hospital in Sydney by the brilliant team under Dr Moore on 1 April 2015.
The treatment process and chemotherapy were ridiculously intense.
That was the most scariest, last best hope to treat my MS – quote from Babylon 5 come on I had to get my geek on 😉
Following a lengthy stay in Canberra Hospital that resulted from a significant MS attack leaving me immobile and unconsciousness. I was hovering around 9 on the below EDSS scale graph. 10 is death.
I knew that I had get up, move and work extremely hard to be able to meet the criteria for the Autologous Hematopoietic Stem Cell Transplant (HSCT) treatment.
I had to be 6 on graph and walk 100 meters. I started with small improvements from moving one toe to eventually walking with cruches.
I JUST KEPT BELIEVING THAT I COULD.
I have to say that the HSCT treatment process was seriously terrifying, life changing and nessary for a chance of quality of life.
Currently I am keeping busy with lots of rehabilitation both physical, mental to remap my neurological paths…kind of like renetworking a computer system.
Plus many more medical appointments and a much needed mother daughter vacation!
Back to reality doctors, medications, physiotherapists, acupuncture….blah blah. It’s all good, I’ll keep moving forward getting stronger and working on my showy off muscles 💪
Love Irene xxx
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